I wanted to say a big thank you for all your help. I really appreciate it. So, let me tell you about what happened with Billie. It all started in August 2023 when he was just 3 months old. Billie had a temperature that didn't go away even after giving him Calpol. Worried, I took him to the A&E, but they sent us home, saying it was just a viral infection. But as the day went on, Billie's condition worsened. His soft spot swelled up, he couldn't feed properly, and he just seemed really unwell. So, I decided to take him to a different hospital.
Thankfully, the staff at the new hospital were fantastic. They suspected meningitis and performed a lumbar puncture and several other tests. We were then admitted to the ward, and Billie was put on antibiotics. But even after a couple of days, there was no improvement. In fact, Billie was getting worse. His glands were swollen, his eyes were sore, he was vomiting, and he developed a rash. He just couldn't find any comfort. It was heart-breaking for me to see him so little and so sick.
That's when they called in a consultant for me to speak to. I told her everything that was happening, and she came back with a diagnosis of Kawasaki disease. I had never even heard of it before. Billie had to undergo two rounds of IVIG treatment because the first one didn't work. We ended up spending two weeks in the hospital, and now we have monthly appointments there. Billie is also being looked after by the cardiology team at Newcastle RVI, but we don't need to see them until next year.
Thanks again for your support, it’s means a lot to me.